So after many many apts at children's over the recents weeks..I decided it was time to get her regular pediatrician's opinion. We talked mainly about how much fluids she should be drinking and if she needed the ng tube like children's keeps saying. Our probem was that even with the tube we could only get about 20 oz a day (milk and water) before her stomach would get really hard, she would get fussy, and wouldn't eat as much. So he said ya because kids her age and size only need 20 oz max and 12 min. (children's said 30 oz min) That way they wont be drinking for nutrition and should be eating more at this age. So then I asked well they said if she didnt drink that much by mouth and tube her meds wouldn't work as well and she would get constipated again...he said he didn't agree. So after all this back and forth we decided to listen to him and just try to get her to drink between 14-16 oz like she has been by mouth and focus on her eating well. (since she lost a whole pound after the clean out last week)
He thinks her weight and height are about same so she looks like she is doing well. Still on the small side but at least staying on her own curve. (5% for weight and 8-9% for height)
Her hips being out are making her right leg 2 inches longer than the left..but hopefully my cousin can help adjust her hips (if it doesn't affect her spina bifida) to make them equal again.
I am so happy we decided to get his opinion and that she can hopefully keep drinking a good amount on her own.
thanks for your prayer and support.
that's great news! Hope all continues well.
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