Hospital Stay

Well as most of you know we had to take Arwen into the ER wed evening to get her stomach checked out. Thankfully her rehab nurse sent in a referral so we didn't have to wait very long in the waiting room. Ha then we had to wait about 3 hours in the ER room to be told she had to be admitted to the GI floor for a clean out. They started her on go lytely through her NG tube pretty quickly, but it took an hour, 5 nurses, and 6 tries to get an IV in her for clear fluids. Not the funnest hour of her poor little life. They ended up having to use a tiny vein on the inside of her wrist which was her right side..so poor thing couldn't use her right arm since it was all tied down to a board.
After staying up till about 1 am she finally got some rest till about 6am when they had to come for another fun enema. Not the best thing to wake up to. Poor baby. She was so miserable and tired. About 11 am they realized she wasn't pooing enough (sorry tmi but ha i guess everything with spina bifida is tmi most of the time lol)
So they doubled her dose of meds and whew it started working quickly. She was blowing through diapers every 20-30 mins.
After a quick afternoon nap Arwen got to enjoy some fun music therapy. She got to play the guitar, piano, shaker, and xylophone. She had a blast! She's a natural like her daddy :)
The doctor came back in mid afternoon to tell us her stomach felt good and they felt she had enough stools to be cleaned out and go home. I was so surprised and so relieved! So now she is sent home with a larger dose of miralax and a new cone enema regiment.
We are still praying she can get off the NG tube soon and not have to look into G tube. (tube in stomach) She has pretty much stopped drinking by mouth and given into tube. So unless she starts drinking more by mouth we are told by her doctors that the G tube is the next step for us. She has to drink more fluids to help keep her constipation away and for all of her different medicines to work properly. She has been gaining weight thankfully..now we are just praying she takes interest in drinking enough fluids.

She was such a brave and happy little girl through all of this. We know God is always taking care of her and loves her more than we do.