We are at the tail end of our trip and have been blessed with much enjoyed family adventures and what looks to be a successful new regiment for Arwen.
We met with rehab to see their opinion on bracing and for now they think her current braces are the best option for her without surgery to help tibial rotation. Her rotation isn't affecting her current function enough to justify surgery, so the only other option is twister cables and I'm not convinced they're for her. So for now we will wait it out unless more changes in her rotation occur.
We still have to meet with the Urology team before we leave. This is the area of concern that has a lot of tests and labs to be done to help determine the best route. Arwen has been super emotional and not herself with doctors on this trip, so please be praying for her as the next couple days will be extra hard on her.
We have been trying to get in as much fun vacation adventures as we can between appointments. The kids have had a blast but I think they're ready for home and normalcy lol.
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